Today I attended a press conference at the Utah Department of Health.  Utah was recently honored for the superior performance of its donor registry at the National Learning Congress for the Donation and Transplantation Community.  Only six states received this honor.  The medal was presented to the Utah Driver License Division for their outstanding support of organ donation.

The award was presented to Nannette Rolfe, Director of the Driver License Division, by Dr. David Sundwall, Executive Director of the Department of Health. 

Sheila Baxter also spoke about how organ donation has affected her life.  Many years ago, one of her aunts donated a kidney to another aunt who was in kidney failure and she made the decision at that time to be an organ donor. 

Several years later, Sheila’s son Tyler turned 16 years old and she went with him to get his driver license.  Tyler asked his mom about organ donation and they discussed what this meant.  Tyler decided that organ donation was a good thing and he marked yes on his license.  Three short years later, Tyler was involved in a fatal accident.  Sheila stated that she was grateful Tyler had made that decision on his license as this would have been a difficult decision to make otherwise.  Sheila then thanked the Driver License Division for all of their hard work.

This is what the registry is all about.  It is so important to mark yes on your driver license or online at www.yesutah.org so that if something happens to you, your family is not put in the position of making a very difficult decision at an even more difficult time.  Thanks Utah Driver License Division for all that you do.

I recently had the opportunity to speak with a sweet woman named Betty.  We talked about her husband, Jim, who was a cornea donor when he passed away last year.  It was an honor for me to talk with her about Jim.  It is always humbling for me when I hear someone express joy for the recipients whose lives are better because of their loved one’s gift.

Jim and Betty had been married just one day short of 52 years when he passed away.  He was 71 years old.  I could feel her love for him come through as she told me about him.  She told me that Jim had moved to Utah from Indiana when he was only 17 years old.  It took a lot of courage for him to move out here by himself at such a young age,  but he wanted to join the ROTC program at the University of Utah.  They met when he was 19 and she was 18.  Together they built a life together and had three children

When Jim passed away, Betty she was asked about cornea donation.  She knew he had ‘donor’ on his driver license and she readily agreed.  “Before this, I didn’t realize how valuable donation was, but now I say take what is needed when I am gone.  Two people can see because of Jim,” she said.

 “He came with nothing and he left being honored on a monument,” she told me, referring to the Celebration of Life Donor Monument on Library Square that honors organ, eye, tissue, blood and living donors.  She took a picture of his name on the Monument to remind her and their children of this selfless act.

What does swimming and organ donation have in common?  For swimmer, James Jonsson, they are both things he is passionate about.

James is a marathon swimmer who is currently training to break the world record for a lengthwise swim across Lake Tahoe.  He is doing this swim to bring attention to the need for others to register as organ, eye and tissue donors.  His challenge to everyone – “If I can break the world record, will you commit to being an organ donor?”

James first recognized the importance of organ donation in the early ’80s when his father, who was also a competitive open water swimmer, went into kidney failure.  A transplant in 1986 gave his father back his quality of life and he was able to continue competitive swimming.

In 2003, James became acquainted with donation from both sides when his son tragically passed away.  He was an organ donor and that decision has impacted several lives.  James has exchanged letters with some of the recipients and is grateful that organ donation allowed something positive to come from his son’s death.

The Daily News of Open Water Swimming recently published an article about his upcoming swim.  James plans on making this 22 mile swim on August 4.  To take James’ challenge and register your wishes to be an organ, eye and tissue donor, log on to www.yesutah.org.

Joanne and Kevin celebrating before the transplant.

I got up really early this morning and drove to the University Hospital!  I wanted the opportunity to see two incredible people before they were wheeled into surgery.  Their names are Joanne and Kevin.

Joanne needed a kidney transplant and her health was slowly getting worse.  Her daughters were willing to donate a kidney to their mother, but they were each ruled out as a possible donor.  Joanne knew that without a transplant she would need to start dialysis soon and the wait for a kidney could take years.  Then Joanne got another offer for a kidney; her ex-son-in-law, Kevin.

The first time I spoke with Joanne, I learned that she tried to dissuade Kevin from donating a kidney.  She didn’t want him to have to take time off work or deal with any other interruptions in his life, but Kevin was insistent, even contacting her tranplant coordinator to learn more about the testing process, donation and the recovery.  Prepared with this information, he went back to Joanne and again offered to give her one of his kidneys.  When Joanne realized how serious he was about this decision, she gratefully agreed.

Shortly before surgery!

When I asked Kevin about his decision to donate, his response was very straight forward, “Mom needed a kidney.  I don’t want her to go on dialysis, so I’ll do what I can to help her.”  He then went on to say that he hopes to be able to educate others a little more about organ donation.  “So many people think you have to be a blood relative to donate,” he said.  “That’s not the case.” 

They both want to educate others about the importance of donation, so they gave an interview to the Salt Lake Tribune the day before surgery and allowed me to take a picture of them at the hospital shortly before surgery.  If you are interested in learning more about living kidney donation, visit the www.yesutah.org website.

Maybe you have noticed the big yellow signs located at some of the driver license offices throughout the State.  They were put up several years ago to let everyone know how incredibly giving and compassionate the people of Utah are.  At that time, we had reached that magic number of 1 million Utahns who had registered their wishes to be an organ, eye and tissue donor.   Unfortunately, over the years those signs have began to fade and lose their attention getting appeal!  A change was definitely needed. 

Luckily, we got on it before the cold weather arrived.  On one of the last warm days of the season, we took a few hours to visit the Driver License offices at West Valley, Fairpark, Farmington and Ogden to replace the aging signs.  If you drive past one of those office, look for the bright yellow sign.  The new sign sports the Yes Utah taxi cab, but more importantly, it reminds people to say “Yes” when getting a driver license or ID card and it includes the website address in case someone has some questions about donation. 

Many thanks to the great people in Utah who have said “Yes!”

I read an interesting article the other day in the Salt Lake Tribune.  It was titled, “The Adrenaline Rush of a Haunted House.”  The article talked about how our bodies have a real, physiological response to fear, even when we know the thing causing fear is not real.  It is that adrenaline rush that draws people to haunted houses.  Reading about our response to fear reminded me of an editorial that Alex McDonald, Public Relations Director at Intermountain Donor Services, wrote last year.  The editorial was titled, “Organ Donation Isn’t Scary” and it debunked many of the myths that people have heard about organ donation.  It also got me thinking about what is scary. 

Organ donation isn’t scary; waiting for a transplant is scary.  Right now there are almost 109,000 people on the national waiting list.  Each one of those people knows the wait might be long and there is no guarantee that they will even get the transplant in time.  Years ago, I was at a meeting where a man told about his transplant.  He was a young man whose heart, very unexpectedly, began to fail.  As he became sicker, he had to be hospitalized for an extended period of time.  While in the hospital, he met another patient who was also waiting for a heart transplant.  Unfortunately, that patient passed away without getting a transplant.  The speaker expressed how it is always difficult to get the news that someone you know has passed away.  Added to this was the very real fear that it could be him.

Saying yes to organ donation is easy.  Getting the facts is also easy.  Log on to www.yesutah.org and make life a little less scary for someone this Halloween.

I spent the evening yesterday at Cottonwood Creek Retirement and Assisted Living. It was their 27th anniversary celebration and they chose to promote organ donation as part of their celebration!!

We provided a program for the residents as they ate dinner. A few of the contestants for Miss Murray donated their time and talents to help with the program. A sweet 90 year old woman then told me she was from Holland and had once been Miss Holland. Meeting her was a real treat for all of us.

Paul Cardall spoke of his heart transplant and then played the piano. The music was incredible. There were also copies of Paul’s new book “Before My Heart Stops” available for sale.

The program ended with a jazz duo playing some very relaxing and easy listening music as people finished eating their desserts. One member of the jazz duo is waiting for a liver transplant and spoke a little about what it is like waiting. It was the perfect ending to a great program.

This letter was written by a mother to her son’s kidney recipient.  With her permission, we have chosen to share this letter in our blog.

My name is Cynthia and I am the mother of Tyrando, whom you received the kidney from.  Although the tragic loss of my son is so heartbreaking, and it still seems so unreal that he is no longer with me in this life, but I know in my heart he is with me in spirit.  I am truly honored on his behalf to have been able to give life to others that are in need.  My son left this life on June 3^rd at the age of 19, and I miss him dearly.  God has blessed you and your family, and that gives me hope and comfort that parts of my son still lives in other people.  I pray that your recovery is successful and you are able to get back in the yard and do the things that you used to do, because being on dialysis isn’t fun for anyone.  In exchange for the gift that was given to you, all I ask is for you to pray for strength for me, his father, and his 2 sisters (age 20 and 8).  God is granting me strength every day so I can take care of some of my son’s unfinished business and bring those things to closure before I return back to work on July 28^th.  He served proudly in the United States Air Force and they have made this whole transition painless by being so accommodating to us because of the pain that we already endure.  The organ that you have received is truly anointed because my son was a True child of God.  May God continue to bless you and your family as you venture on with your new found life that my son has given you.  Take care and get well soon!  I am responding to the letter that was forwarded to me from the Donor Services.

Cynthia

Sunday is Father’s Day.  For some of us, that will conjure up images of a tie, for others it reminds us of good times shared with our fathers.  In my job, I’ve had the opportunity to meet many fathers who have found themselves trying to beat difficult odds.  Just the other day, a father came in to my office with his son who is working on an Eagle Scout project.  The young man chose to raise awareness about the need for people to register as organ donors because his father received a heart transplant and he knows firsthand what that can mean to a recipient’s family.

I also know a father who suddenly found himself as the primary caretaker when his wife went into heart failure and learned that she would need a heart transplant.  Another father sat nervously in a hospital waiting room while two of his adult children underwent surgery.  His daughter was donating a kidney to her older brother.  I have also met a couple of fathers, who during the most difficult time in their lives, looked beyond their own grief over the death of a child and allowed their child’s organs to save the lives of others.

My own father would sacrifice anything for his family and my life is better because of his unselfish dedication.  These fathers have taken what life has offered and used it to make life better for their own families and others.  To all the fathers out there, “Happy Father’s Day.”

Yesterday, KSL and the Salt Lake Tribune reported on the fifteenth anniversary of the Kurt Oscarson Children’s Organ Transplant Fund.  This fund was created in response to the challenges two Utah families faced when their children needed liver transplants.  Both families were struggling to raise enough money to cover the transplants.  A fifth grade class at Crescent Elementary in Sandy decided to help.  They contacted State Representative, Kurt Oscarson and ultimately this fund was created.

At a press conference, both of the mothers involved spoke about what it was like to face the challenges of a very sick child and lack of finances.  At the time, pediatric liver transplants were not done in Utah, so they both needed to travel to Wisconsin.  Their children, now adults, then spoke.

Talysa was only ten months old when she received her liver transplant and she says she feels lucky that she doesn’t remember the transplant or how sick she became.  She has met others who remember how hard and scary it is to need a transplant.  It has been 20 years since her transplant and she is doing great.  She expressed gratitude to her family, neighbors and everyone who makes this fund work.

Caleb was four years old when he had his transplant, but says he doesn’t remember much more about it than Talysa remembers about her transplant.  He is now a healthy 23 year old.  His gratitude was evident as he stated, “I’m grateful to the people who were selfless enough to allow themselves to become donors to give someone else a second chance and I wish to express my gratitude to everyone who has made that choice on their driver license.”   

Donations to the Kurt Oscarson Children’s Organ Transplant Fund can be made on your Utah State Tax Return.  Register as a donor at www.yesutah.org.