This letter was written by a mother to her son’s kidney recipient.  With her permission, we have chosen to share this letter in our blog.

My name is Cynthia and I am the mother of Tyrando, whom you received the kidney from.  Although the tragic loss of my son is so heartbreaking, and it still seems so unreal that he is no longer with me in this life, but I know in my heart he is with me in spirit.  I am truly honored on his behalf to have been able to give life to others that are in need.  My son left this life on June 3^rd at the age of 19, and I miss him dearly.  God has blessed you and your family, and that gives me hope and comfort that parts of my son still lives in other people.  I pray that your recovery is successful and you are able to get back in the yard and do the things that you used to do, because being on dialysis isn’t fun for anyone.  In exchange for the gift that was given to you, all I ask is for you to pray for strength for me, his father, and his 2 sisters (age 20 and 8).  God is granting me strength every day so I can take care of some of my son’s unfinished business and bring those things to closure before I return back to work on July 28^th.  He served proudly in the United States Air Force and they have made this whole transition painless by being so accommodating to us because of the pain that we already endure.  The organ that you have received is truly anointed because my son was a True child of God.  May God continue to bless you and your family as you venture on with your new found life that my son has given you.  Take care and get well soon!  I am responding to the letter that was forwarded to me from the Donor Services.

Cynthia

Sunday is Father’s Day.  For some of us, that will conjure up images of a tie, for others it reminds us of good times shared with our fathers.  In my job, I’ve had the opportunity to meet many fathers who have found themselves trying to beat difficult odds.  Just the other day, a father came in to my office with his son who is working on an Eagle Scout project.  The young man chose to raise awareness about the need for people to register as organ donors because his father received a heart transplant and he knows firsthand what that can mean to a recipient’s family.

I also know a father who suddenly found himself as the primary caretaker when his wife went into heart failure and learned that she would need a heart transplant.  Another father sat nervously in a hospital waiting room while two of his adult children underwent surgery.  His daughter was donating a kidney to her older brother.  I have also met a couple of fathers, who during the most difficult time in their lives, looked beyond their own grief over the death of a child and allowed their child’s organs to save the lives of others.

My own father would sacrifice anything for his family and my life is better because of his unselfish dedication.  These fathers have taken what life has offered and used it to make life better for their own families and others.  To all the fathers out there, “Happy Father’s Day.”

High school seniors everywhere are looking forward to graduation and making plans for jobs, college, and dozens of other options that are open to them.  Hali, a high school senior, found out how quickly those plans can be sidetracked.

Last year, Hali was very involved in school and other activities.  She ran every day, played on her high school tennis team, and played the cello in a Youth Symphony.  When it came time to register for her senior year, she elected to take 5 Advanced Placement (AP) classes to give her a head start on her college education. 

Toward the end of her junior year, Hali became sick.  A trip to the doctor reassured her that it was most likely a bad case of the flu and she just needed some rest.  However, the flu-like symptoms worsened and then she had a seizure.  Tests to determine the cause of her seizure showed signs of kidney failure.  Ironically, on the July 4 weekend, when most of us are celebrating our freedom, Hali started her dialysis treatments.

For Hali, dialysis is every Monday, Wednesday, and Friday and each dialysis session lasts about three hours.  On those days, she attends her first two classes and works with her teachers in her other two classes to get her assignments.  Often the treatments leave her too tired to complete assignments, making more work on the days she doesn’t go to dialysis.

She also discovered the unusual side effects of kidney disease.  She began her senior year with what she describes as ‘chipmunk cheeks’ because of the new medications she was taking.  She is no longer able to eat chocolate, peanut butter, or a whole list of other items.  She is also very limited on fluid intake, being allowed only about 40 ounces of anything liquid (including things that can melt, like Jell-O or ice cream) each day.

Hali’s family began considering living kidney donation as soon as they learned she would need a transplant.  No one in her immediate family was a match, but a cousin was tested and will be able to donate to her.  She hopes to have the transplant after her high school graduation and be able to recover in time to start college in January. 

On the national waiting there are over 80,000 people who are waiting for a kidney transplant.  For information about kidney donation, log on to www.yesutah.org or call 1.866.YES.UTAH.

A few months ago, I contacted several people and asked them if they would share their donation or transplant story with me. I want to share some of those stories starting with a little girl named Abbigail.

Abbigail’s father described her as a little girl with a big heart.  Like many four-year-old girls, she simply adored the Disney princesses, so she was in total bliss when her family was able to visit Disneyland during a trip to California for her uncle’s wedding.  It was a fantastic trip, and they enjoyed the time they were able to spend together as a family, laughing, taking pictures, and just being together.  At the time, they had no idea how treasured those memories in California and Disneyland would be.

 The day after they returned home, their lives drastically changed.  Abbigail’s dad, Marcus, left for his shift as an officer with a County Sheriff’s office. While Marcus was on patrol, a call came over his radio stating emergency crews were being sent to respond to a 911 call about a four-year-old who was not breathing and his address was given as the location.  

By the time Marcus reached his home, paramedics were already on the scene. Marcus learned that Abbigail had put a bouncy ball in her mouth and it had become lodged in her throat.  The emergency crew was able to dislodge the ball and had begun CPR but the situation was serious.  Abbigail was flown to Primary Children’s Medical Center where they would be better equipped to deal with this type of emergency. 

Upon arriving at Primary Children’s Medical Center, the medical staff determined that Abbigail was brain dead.  Marcus and Deborah were devastated. They were asked whether or not they wanted to consider organ donation.  “My wife and I discussed organ donation.  The thought of Abbigail being able to continue to help others through organ donation became somewhat of a comfort to us and we decided to give our consent,” said Marcus.  “The biggest thing about Abbigail was her heart, which she gave to anyone and everyone. There was comfort in knowing, that in the face of tragedy, our child was able to help others.”  

Considering her ‘big heart,’ it seemed fitting that Abbigail was able to donate her heart valves to someone in need.  Her kidneys and liver were also donated. 

If you are not already signed up on the Utah Donor Registry, please consider doing so at www.yesutah.org.

April, National Donate Life Month, is almost over.  Throughout the month, I have had the opportunity to meet a lot of incredible people and attend some very touching events. 

Two of the people I had the pleasure of meeting were Mike Parke, Funeral Director at the Parke’s Magic Valley Funeral Home, and his wife Catherine.  Mike had a liver transplant in 2008 and says he feels better than he has in 20 years!  He expressed gratitude for the overwhelming support he received from people in his community prior to and following his transplant.  He is now a strong advocate for donation and is looking for ways to make a difference in his community and throughout Idaho. 

I attended a community event at Ogden Regional Hospital where Dr. Wahlstrom and his son Andy spoke about the impact organ donation has played in their lives.  Andy received a kidney from his younger sister, Mallory, several months ago.  Dr. Wahlstrom shared what is was like as a father to watch as two of his children were wheeled in to surgery.  Both Andy and Mallory, who is the current Miss Kaysville-Fruit Heights, are doing well. 

The Wahlstroms were followed by Paul Cardall, concert pianist and heart recipient.  Paul told a little about his heart condition and the disappointments and tragedies his family has faced in the last year.  He has gained a new perspective that has increased his great gratitude toward his donor and their family.  He then played a song he wrote for a baby he met at Primary Children’s Hospital, “Gracie’s Song.”  This beautiful song set the mood for the raising of the Donate Life flag which took place immediately following the speakers.

I also continued to see the need.  I interviewed a teenager on dialysis, met a toddler who needs an intestinal transplant, and spent some time with a woman who needs a new heart.  I hope next April finds these people doing well and ready to celebrate with us.  If you haven’t registered as an organ, eye, and tissue donor, it’s as easy as logging onto http://www.yesutah.org/ and clicking on the big, yellow “Register Now” button.

When my phone rang last week, I recognized the number and answered, “Hey Marco.  How are you?” 

“I’m great,” he responded. 

Sounds like a pretty normal conversation, but there was a lot more in Marco’s answer than just a casual response.  Marco had received a kidney transplant just two weeks earlier and that answer meant the kidney was working, he was recovering from his surgery, and he didn’t have to go to dialysis that morning.  He spent over three years waiting for a kidney, so I can only begin to imagine what this means to him. 

Marco’s kidney came from a very incredible man named Scott.  I’ve heard Scott described as a generous man who is always quietly helping others.  Scott didn’t know Marco, but he did know the need for kidney donation was great, so he made a phone call to Intermountain Donor Services several months ago to inquire about Good Samaritan Kidney Donation.  His decision to donate gave Marco a whole new chance at life.

Marco was interviewed on Fox 13 news this morning about life after transplant.  Scott wanted to be there, but the travel distance and early morning hour made it infeasible.   His daughter has set a goal to double the number of Good Samaritan Kidney Donors this year, so he will be telling people about living kidney donation and the young man he freed from dialysis.

To learn more, log on to www.yesutah.org.

Right before Christmas, I had the opportunity to meet two great people.  Fapuiaki, a precocious four year old, and Marco, a motivated 20 year old.  I met them both at a local dialysis center.

Every Monday, Wednesday and Friday, for four hours, they are hooked up to a dialysis machine. For three years Marco has gone to dialysis at 5:30 am to begin his treatments. “It’s pretty tiring, especially working full time and going to college too,” says Marco. “I’m just hoping to get a transplant soon so I can get back to a more ‘normal life.’”

For Fapuiki’s parents, it has been a life changing event.  What is especially frustrating for Fapuiki’s father is he is not a match to donate a kidney to his daughter. “I thought it would be no problem, since, basically, she is a part of me. As a father, I want to do everything I can to help her get well. This really isn’t a way for anyone to spend their childhood.”

Eight years ago, the Good Samaritan Living Kidney Donor Program was started to help kids like Marco and Fapuiaki. Over 45 people have become living kidney donors thanks to that program.  Now with paired kidney exchanges, living kidney donors can have an even greater impact.

Go to yesutah.org to find out how you can help Fapuiaki and Marco celebrate next Christmas free from dialysis. Please think about becoming a living kidney donor.

Written by:  Tyler – a fifth grade student

                                     I saw him and could see the tears in his eyes,

                                    My brother Jared, sick and needing a transplant to save his life.

                                    He is suffering, yet such a strong little boy

                                    He has to go through so much,

                                    Still so sweet, even when everything is tough.

                                    He needed just one,

                                    One person, to survive.

                                    That person who needed just one part to provide.

                                    Jared was given that one part, just one

                                    From a person who passed away

                                    To give Jared his freedom.

                                    Now after that event, my brother is free

                                    And knows more things, is as happy as can be.

                                    Of course his is still that little boy that I know,

                                    But he now has the strength to run

                                    Because of love and the power of one.